Wednesday, October 12, 2011

Happy Birthday, Dad. We miss you every day.





11-7-09

When I arrived at Dad’s house on Monday morning, I noticed a new book lying on the counter next to the phone.  I recognized it right away because it was the same book I had chosen out of my library stack to bring with me.  Dad had started reading the two previous books by the same author while at my house in Madison this summer and I was looking forward to talking to him about them.  They are about life, love, and loss and set in small-town Northern Wisconsin.  Of course he loved them.

I have loved my Dad since he first met my Mom.  He would play Barbies and horses with me for hours and listen patiently when I admonished him for not playing Barbie “the right way.”  I had a wobble-headed Ken doll who always managed to try to look up Barbie’s skirt somehow.  I have never seem him move faster than when I put my pet rat on his back while he was lying on the floor watching MTV.  He must have still liked me, though, because I remember him reading me bedtime stories involving long Indiana Jones tales.  Dad would always try to skip a few pages while I was dozing off, but I’d always catch him and it became a game we played.  Once, when I was 10 I went out fishing with Dad and he pulled out and lit a cigar.  I asked if I could have one, too.  ‘Sure,’ he said, helping me light it.  This was no swisher sweet as he usually favored, it was a big, nasty, unfiltered monster.  I don’t recall how much of it I smoked but I’ve never been interested in smoking since then.

Dad gave me wonderful gifts – first his love, then his name, and maybe the best gift of all, a little brother.  Shortly after his birth, Dad and I kicked an exhausted Mom out of her hospital bed and made her photograph us lying on either side of little Monty.  We spent all night and the next day smoothing his head, which was cone-shaped after passing through the birth canal, into a rounder shape.  You’re welcome, Monty.

I was proud to represent Cadott as Nabor Days Queen from 93-94 and Dad often drove the float.  I am pretty sure I have been to every small, family diner/restaurant in the tri-county area.  Dad was a people person.  That was something about Dad that was continually reinforced in later years, too.  Dad had his own time for doing things.  If I was expecting him in Madison at say 5pm, I learned to broaden his ETA to more of a window, say between 5 and 8pm.  Dad would surely stop in Tomah at Goodwill to pick up things for the kids and of course he’d get into a conversation with someone he knew or didn’t know at a restaurant along the way.

Dad loved helping others.  I remember him collecting toys and school supplies for needy children at Christmas time.  He also treasured his bible study groups and friends he had met through Divorce Care.
Dad was especially pleased when Monty joined his first band.  A love of music had been so influential in shaping his life and he wanted to share that with his son.  He treasured his time and closeness with Monty and loved when they worked as a team with the DJ bookings and building projects.  They were truly best friends and Dad loved being so much a part of Monty’s life.

This year has been a difficult one for my family.  Dad has helped us so much in the last year that I know I have taken him for granted.  When I had my appendix out, he was there to help with the kids.  When Levi was in the ICU due to complications from H1N1 this summer, Dad was there.  When I needed to do job training this summer before school started, he came and stayed with us again.  Grandpa, or G-Pa, as my kids took to calling him after he wrote that as short-hand on their Christmas gifts one year, would entertain them with his drawing skills and would stay up late reading Little House on the Prairie and telling family stories.  

Dad, G-Pa, Richard, meant a lot of things to a lot of people.  He loved to entertain, he wore his heart on his sleeve, and he taught me a lot about what it means to love someone and what it means to love a place.  We are left to miss you but we know you are with God.  We know you are playing in your “Dream Band” and all the Angels are dancing.

Friday, September 23, 2011

Hey Doc: Can I get some data on this please?

My five year-old has developed a type of sleep apnea caused by his large tonsils that flop back and block his airway when he lies down.  He's otherwise healthy and doesn't suffer the frequent bouts of tonsillitis that led to the removal of my tonsils at the tender age of three.  I thought it was great because whenever I pushed my call button I got a cherry popsicle.  To this day I crave popsicles when I have a sore throat.  I haven't missed my tonsils, but I'm hesitant to automatically sign my son up to have the surgery.  Why?  Because I don't feel like I can make an informed decision.

I understand enough about risk to know that it is probably far riskier for my son to ride in a car than to go under general anesthesia to have this procedure.  But I don't KNOW that.  Whatever I do know I've learned by scouring the Internet and soliciting advice from friends.  I certainly wasn't told your son has a 1 in X chance of mortality from the general anesthesia.  And I wasn't given any context to interpret that risk, say for example, your chances of dying in a plane crash are roughly one in a million.

There's also the matter of being informed about treatment options, including the option of doing nothing.  The number of childhood tonsillectomies for tonsillitis went down dramatically when data from case studies suggested similar rates of sore throats for kids who had their tonsils removed and who didn't about two years after the operation.  When I asked what would happen if we didn't do the surgery I received a somewhat vague answer in the form of what I assume are largely associational studies linking sleep apnea with growth restriction and ADHD.  Common underlying cause anyone?  I specifically went to this doctor because Perrin's primary doc said that this specialist was not likely to take the tonsils out unless "they really need to come out."

I believe that this doctor and other doctors I've known and received care from really do have the best interests of the patient at heart.  We have been on the receiving end of extraordinary care and literally life-saving interventions by many talented, dedicated doctors and nurses.  The more experience I have, however, the more I realize that I am more of an expert on my child than anyone (except maybe his father).  The responsibility of making this decision for my child to undergo a certain amount of risk in order to hopefully achieve an outcome of improved health, however, is not an easy one.  It keeps me awake at night.  It's also not made any easier by my feeling that I simply do not have the data I need to make this decision.  After all, doctors are specialists with a certain kind of training.  Their training is certainly impressive and allows them to greatly affect the health of an individual.  They will apply the training they have but simply because humans and the disciplines they create must necessarily be defined and therefore limited, they will only have certain tools.  In this case, the tool is taking out my son's tonsils.    

What frustrates me is that I am not given more information to make this decision by those recommending it.  Hey, doc, I can read.  The public education system actually did a pretty good job for me and if you pull out a summary of articles on the topic I can probably follow along.  Even if I was not privileged to have a great education or language skills, give me the data anyway.  Maybe I could get someone to help me read it.  In any case, I would rather be overwhelmed with a massive amount of information than overwhelmed with the feeling that I can't make an informed decision.

I understand and appreciate how lucky we are that this is a fairly minor issue.  Ultimately we'll do what we think is in Perrin's best interest.  But we'll educate ourselves as best as we can before we make the decision.

Friday, May 6, 2011

Happy Mother's Day!! If you find this post amusing...you might be a mom!

I'm going to borrow heavily from Jeff Foxworthy for this one but I think it works.  Consider it a comedic liturgical response:

1.  If you have mastered the art of performing common household tasks that typically require two hands with one hand such as washing dishes, folding laundry, paying bills...

...You might be a mom!






2.   If your idea of the perfect morning involves sleeping past 6:30 am...

...You might be a mom!






3.  If you wonder how many times in your life you've said the phrases "Stop bugging your sister!" and "Who forgot to flush?"

...You might be a mom!







4.  If you no longer order your own dinner when at a restaurant but instead wait to scavenge what your kids have not eaten...

...You might be a mom!









5.  If you can seriously say you enjoyed "How to Train your Dragon" more than "Black Swan"...

....You might be a mom!









6.  If you can make a kids' costume in two hours using only household objects, a hot glue gun, and tin foil...

...You might be a mom!




7.  If you frequently find yourself wandering around your house, toothbrush in one hand, forgetting why you went into that room...

...You might be a mom!









8.  If you consider any item of clothing without bodily fluids on it to be "clean"...

...You might be a mom!






9.  If your idea of the perfect romantic getaway with your partner is spending a couple of days in bed at a B&B...SLEEPING...

...You might be a mom!







10.  Finally, if you finally understand how much your own mom (if she was biologically your mom or not) did for you and marvel at the fact that she still kind of likes you...

...You might be a mom!




Thanks Moms!!  You rock!!

Sunday, February 13, 2011

H1N1 and One Family's Story of Appreciation for Union-won Benefits




My name is Tanya Cook.  I am a graduate student in the sociology department at UW-Madison, a Wisconsin native, and the mother of three great kids.  I’d like to share my family’s story with you.  I hope it helps illustrate how the Emergency Budget Repair Bill may hurt Wisconsin families by restricting Union bargaining rights.  If this bill passes, it may have the damaging effect of eliminating health insurance and tuition remission benefits for many teaching and project assistants at the UW.  Losing my tuition benefit and/or health insurance is literally taking money away from my kids.  I cannot overstate how much my family has appreciated the insurance benefit.  

In May of 2009 while working as a project assistant and covered by my health insurance benefit through the UW, I had an emergency appendectomy.  Less than three weeks after recovering from this procedure my husband became gravely ill with H1N1.  He experienced lung failure and was put into an induced coma in the ICU for a month so that a ventilator could assist with his breathing.  Thankfully he recovered and was able to return home after a two-month hospital stay.  We are grateful for the excellent care he received, the support of family and friends, and definitely feel blessed by a higher power for his survival.  We are also grateful that we paid very little out of pocket for what totaled over $150,000 in medical expenses.  Without our insurance benefit, if we had had to pay even a portion of this total our family may have had to declare bankruptcy.  When you are a young healthy person it is easy to take your health for granted, but as we learned in 2009, even healthy people can become deathly ill in days.  

I am thinking about all of the people that may suffer if this goes through.  I think this could have the effect of putting more grad students with families on Badger Care and food stamps.  Luckily my husband's income pays for our cost of living but there are many single student parents who do not have the option of being covered by their partner's income/insurance.  These individuals provide valuable services to the state as a whole.  We educate your children while taking care of our own.  We love our jobs, we love working with students, and we want to continue to serve and help others with our work.

Friday, February 4, 2011

Happy Valentine's Day: Love Hurts

We've all had that heartbreak moment when we've recalled the lyrics of the popular Nazareth cover of "Love Hurts."  "Love hurts, love scars, love wounds and marks."  As parents we get to experience love and pain in new dimensions.  

This will be my tenth year as a parent.  I remember people saying things like "your life is over," and "everything will change" when I was pregnant with my oldest.  I hated it when people said these things.  To me they were nearly as unwelcome as the comments about my growing girth, "Wow you're getting fat/big/large/huge."  Yes, I am big, yes this child is making me eat a pint of Haagen Dazs and several bacon sandwiches a day.  So what?  Kiss my expanding ass.

Aside from the fact that these comments are terribly cliche they are also terribly obvious.  Yes, everything does change.  Yes, your life as you know it is over, but that's not necessarily a bad thing.  Words like "busy" and "tired" take on whole new meanings, but the really tough part of parenting is not the 2 am feedings or micro managing a toddler.  Although these activities are certainly exhausting, it's the emotional burden of parenting that will give you the proverbial gray hair.  

I'm sure I'm borrowing this metaphor and it may be just as cliche as the well-meaning comments I abhorred, but having a child is truly like having your heart grow legs and walk around outside of you.  Loving my children is the most emotionally painful thing I've ever experienced because I have absolutely no control.  I have no choice in loving them, loving them utterly, completely, to distraction.  As much as I do to ensure their safety and well being, I can't keep them in the protective bubble I'd like to at times.  Life is risky and there's not really a damn thing I can do about it.  

When they get sick it's not the endless management of bodily fluids that gets to me (although this is not fun), it's the fear.  The fear that they might not make it.  The fear that this virus will be deadly overwhelms me.  Most of the time, if we are lucky, I think we all go about our day as though we'll continue to have good health and the blessings of enough to eat and clean water.  But when someone you love is suffering, all of your mental capacity becomes focused on one prayer/mantra:  "please-please-please-please-please let them be okay."  You beg until their temperature drops, they stop vomiting, or they get up and run around again and then you breathe the sigh-of-relief prayer "thank you!"  All is not well, however.  Things will never be the same. After all, "love hurts...love marks."